Monday, December 16, 2013

What is to come

Have some news. I went to the doc last Tuesday and found out why I am having so many issues and pain. It is suspected that I have Endometriomas on both ovaries, my adeno has gotten significantly worse (they can tell by how much bigger one side of my uterus is since the last sono), and my ovaries are both adhered. It is also suspected that the majority, if not all, of my previous adhesion's have returned. When my sonogram was done, it was proven that my left ovary moves with my uterus and therefore suspected to be adhered to it. My right ovary was more painful than my left and is suspected to be adhered back to my bowel. My ovaries hurt worse than my uterus did. Although every aspect of the sonogram was quite painful. It hurt worse this go around than it did 8 months ago.
The sonogram tech is a wonderful lady. She is as gentle as she can be, and explains everything she is doing/seeing as she does it. She put my sonogram from 8 months ago up and compared it to the current sono as she looked at everything. My mind was not into looking at both sonos. I was having trouble dealing with the pain and being able to concentrate and follow along with what she was finding and explaining. Thank the good Lord above for my husband. He was comparing the old sono pic with what he was seeing and said that the adeno had made the posterior/back side of my uterus about 65% larger than it was 8 months ago.
After discussing the findings with my specialist, we have come to the conclusion that the best course of treatment for me, at this stage in the game, is to take out my uterus and ovaries. The adeno is progressively getting worse, and the only way to cure that is to have the uterus taken out. My ovaries are continuing to get adhered to other organs and are developing endometriomas and cysts, so they are not able to function correctly and causing a significant amount of pain.
I am not going to get into the feelings that I have on this today. I just wanted to update what the doctor had found. Since the sonogram, I have had significant pain. I called the Dr and was told that the sono may have aggravated some things and that I need to take it easy and let the area heal/calm down. I have felt like I am on my monthly and I haven't been since last Tuesday. I am having some spotting from time to time, but barely noticeable except for when I use the restroom.
This illness has taken so much from me. My hope is that the hysterectomy will bring me SOME relief from SOME of the pain, so that I may be able to actually live a portion of my life. I will be 33 in March, in fact four days after the EndoMarch2014. I suspect that I will be recovering from surgery while everyone is marching. Maybe I can get just enough relief to be able to make it to next years march! I know that it will not cure my endometriosis, and I know that it won't fix the adhesion problem, but I also know that I won't have adenomyosis anymore and no more periods. Hoping that it will be enough to allow me to clean my house and help my husband more with some of the things we need to get done. I need at least a little relief. Something would be better than nothing, as I am hitting my breaking point.

I hope everyone is having a better week than I. If you haven't signed up or heard about the EndoMarch2014, please look into it. The more people that know, the more awareness we spread.
www.millionwomanmarch2014.org
You can also get your Endometriosis Support Ribbon Scarves on my website: www.dkbcrochetworks.com A portion of each sale is donated to your states GoFund account to help get to the EndoMarch. When the date has passed for the EndoMarch, I will start to donate to a charity to help fund the search for a cure.
I want to make sure that no one thinks I am trying to get rich by selling these. Each scarf takes me about 4 hours to make, I make about $12/scarf, so it averages out to around $3/hour.

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